• Support Network and Information Exchange - In order to increase the ability of families of individuals with spina bifida to better manage their child's care, a support network and information exchange between parents and the association was established.
  
  Individuals with spina bifida and their families can receive information and referral services from the association by calling 1-888-733-0988.
  
  A "Directory of Services for Individuals with Spina Bifida and Related Conditions" is published bi-annually and distributed to our members. The seventy-page directory includes national, state and county listings of education services, individual and family support services, employment services, government agencies, recreation services, residential facilities, and transportation services for individuals with developmental disabilities. If you would like to receive a copy of the directory, click on Directory Order Form.
  
  The association publishes a quarterly newsletter, The Spinal Column that includes information about the association's services, resources, medical and legislative updates, information about our local chapters' activities. If you would like to subscribe to The Spinal Column, click on Newsletter Order Form.
   
• Parent-to-Parent Support - Parents can receive support and exchange information through our local chapter network. For more information, go to About Our Local Chapters.
   
• Special Needs Fund - Through grant funding, the association has established a Special Needs Fund to provide financial assistance to our members for unsupported medical costs and support services. For more information about the fund and to obtain an application, contact the association at 1-888-733-0988.
   
• Annual Education Conference - held in October to provide individuals with spina bifida, their families and health care providers updates on current best practices in the diagnosis, treatment and prevention of spina bifida.
   
• New Parent Visitation Program - The association provides informational kits to new parents of children born with spina bifida. Parent volunteers from local chapters are available to meet with new parents.

Chesapeake-Potomac Spina Bifida Association, Inc.
P.O. Box 1750
Annapolis, Maryland 21404
Phone: 1-888-733-0988
Fax: 1-410-295-9744