Chesapeake Potomac Spina Bifida, Inc - Resources | Support | Information

This page is a compilation of information and resources intended to be a service to individuals with spina bifida and their families. Inclusion of the Web sites below does not imply endorsement. Any medical or health care reference is intended for informational purposes only.

Spina Bifida and Related Disorders

Anencephaly Support Foundation - Provides information, personal stories, medical articles, research updates and links to information

Hydrocephalus Association of America - Provides support, education, resources for individuals, families and professionals

Kennedy Krieger Institute - is an internationally recognized facility dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. The Philip A. Keelty Center for Spina Bifida and Related Conditions serves children and adults with spina bifida.

Latex Allergy Links - A comprehensive listing of latex allergy related sites on the Internet. It also includes articles and practical information about latex allergy.

National Center for Learning Disabilities - Provides information and publications about learning disabilities

Spina Bifida Association of America - Provides medical, research, educational updates and publications

Lifestyle Accelerator - a discussion board on a variety of topics from health to fashion, forums and blogs for individuals with spina bifida.

Spina Bifida.Net - Provides general information about spina bifida and links to information

eCommunities

bifida-chat - List serve for people whose lives are affected by spina bifida.

bifida-l - List serve started in 1995 at Dakota State University. Currently has over 300 members

Nursing and Healthcare Professional Council's (NHPC) ListServ
The purpose of this list is to provide an online discussion resource for nurses, nursing students, physical therapists, occupational therapists, and other health care personnel who are routinely involved in the treatment and care of individuals with spina bifida.

sb_adults - List serve for adults with spina bifida age 18 and over

SB Parents ListServ
The SB Parents Listserv is for any parent of a child who has spina bifida. Use the SB Parents list to exchange ideas, resources, debate, and have some great discussions.

SB Teens - List serve on the Internet for teens with spina bifida

Spina Bifida Central - A club for individuals with spina bifida: chat room, message board, and news

Spina Bifida Connection - A Free online discussion group for individuals affected by spina bifida.

Youth and Adult Alliance (YAA) ListServ
The YAA is a link for adults with spina bifida, young and old, to communicate with each other about a wide range of issues of common interest.

YAA BLOG
Link into the Spina Bifida Community. You'll meet fascinating people, learn about the latest treatments and research and find out about the most recent events that affect adults of all ages living and thriving with spina bifida. The YAA BLOG is updated regularly so visit often.

General Disability Information

disAbility Information and Resources - Provides links to products and services, legal and medical resources

Family Village - A global community that integrates information, resources and communication opportunities on the Internet for persons with cognitive and other disabilities; includes information on specific diagnoses, adaptive products and technology, adaptive recreational activities, and literature.

National Center on Physical Activity and Disability - a national organization that publishes online monthly newsletter, national and regional resources on physical activity and disability.

National Spinal Cord Injury Association - a national organization with national and local resources, conferences, research on spinal cord injury and disease.

Products and Services

Assistive Technology

ABLEDATA
800-227-0216
www.abledata.com

Home Adaptation/Design

Barrier Free Lifts, Inc.
800-582-8732

Incontinence Products

Atlantic Health Care, Inc.
800-766-5448

A-Med Health Care
800- 552-2633
www.a-med.com

Coloplast Corp
800-788-0293
www.coloplast.com

DS Medical
770- 407-4376
www.dsmedical.com

Duraline
800-654-3376

Hollister
800- 624-5369
www.hollister.com

Home Delivery Incontinent Supplies Co.
800- 269-4663

LoFric
877-456-3742
www.astratechusa.com

Mentor
800-328-3863
www.mentorcorp.com

Rusch
770-623-0816
www.rusch.com